Research
Researching the unmet needs, value proposition, key considerations for implementation, as well as different use cases in decentralized health data management, is critical to advance our mission. Please find below the list of publications authored or co-authored by Etheros HealthData Foundation.
2024: “Decentralized Health Data Management: An overview of solutions empowering individuals to own, share and benefit from their health data”
- In partnership with CryptoValley Association, Switzerland
- Authors: Carmen Cucul, Hui Huang, Lu Zheng, Thomas Egelhof
Currently, over 30% of all data generated globally pertains to healthcare. Unfortunately, most health data is siloed, unstructured and not shared beyond its primary use. This makes the healthcare system less efficient, accessible, equitable and affordable than it otherwise would be.
In a promising development, the emergence of health and wellness applications, wearables, and decentralized technologies like blockchain have begun to empower individuals with ownership, sharing capabilities, and the opportunity to derive value from their health data.
- Store their health data, encompassing information from wearables, patient reported outcomes (PROs), medical records, laboratory results and more
- Share aforementioned health data to chosen entities, whether they be researchers, healthcare professionals, friends and family or others
- Benefit from sharing their data, potentially through rewards such as tokens, badges, or access to discounted or complimentary value-adding products or services
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